Advocacy

Ensuring equal rights and representation 

To ensure individuals with PWS and disability issues are represented to the state, federal and local governments, including school systems. Recently we had a great victory with the State of Colorado recognizing PWS as a disability and consequently ensuring families receive adequate support.

News

Mother & Daughter Fight For Bill To Help With Rare Eating Disorder

State lawmakers are coming together to help a Monument teenager and other Coloradans impacted by a rare genetic condition that causes people to eat uncontrollably.

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2018-10-19T18:48:10+00:00