We envision a world where…
Those diagnosed with PWS have treatments and interventions available that allow them to lead a normal AND INDEPENDENT life!
Many of the challenges once associated with PWS, including behavioral or psychiatric concerns, are now medically manageable and no longer prevent individuals from functioning autonomously within society. Advances in medical research have identified the specific genes commonly affected by PWS, allowing for targeted interventions that address and often correct these deficiencies. As a result, PWS is now widely recognized both in the medical community and in broader society, with diagnosis reliably occurring at birth, ensuring early access to care and support.